The Journey

ago my life changed.  I got a cal at work and my world got flipped, turned upside down.  It is still strange and foreign to me and this battle is far from over, in fact it has just begun. I have never been able to sit still, I don't call it ADD because I have no problem focusing or paying attention, I simply always felt as if I was wasting my time by not doing anything.  I sometimes have a hard time watching television shows because I feel like I am wasting time not being productive for myself or someone else, and this was before I was diagnosed.  I also know that part of the reason I felt so wasteful in doing nothing was because I always knew I was meant for something, anything more than what I was in life.  After I was diagnosed, this multiplied by about a thousand which is quite troublesome and contradictory to what every doctor suggests I do.  They all want me to heal, not be active and stay in bed.  There is a problem with this, because lay...

I have seen many people that I have not seen a very long time recently and yes I have cancer and yes I have lost weight.  The reason I lost weight is because of the cancer, but not necessarily why you would think.  Most cancer patients lose weight because they are too sick to eat or simply have no appetite.  This is not the case for myself.  My appetite has not changed since the day I was diagnosed and if anything, I am now taking in more calories than I ever have.  The difference is I now know what I am eating.  People change their diets for a myriad of reasons, I changed my diet to save my life. My new diet consists of only the basics:  I eat very lean meats (chicken, and bison meat preferred behind white fishes and tunas.)  I eat AND juice vegetables only (no fruit at all since my specific cancer needs fructose to thrive and fructose is the natural sugar in fruit.)  I get a lot of good fats in avocados, extra virgin olive oils, raw ...

Today I had my first MRI post radiation and chemo.  To say I was nervous would probably be an understatement.  The hard part about all of this is not the treatment, the diagnosis, it is not the pain or any of the other million things that accompany cancer; the hard part is the waiting.  The so called 'limbo' stage where I do not know too much one way or another.  The anxiety that this causes is unreal and anyone who has or is going through cancer will tell you the same.  The waiting game is the real torture.  Once I have an answer, at least it is confirmed one way or another, until that answer is clear I still have to know that it can go either way and one of those directions is obviously a direction I am not hoping for.  I sat in the little tunnel of claustrophobia for what seemed like an eternity and the entire time I visualized myself inside my brain leading an army of battle warriors against an army of evil.  I visualized this battle taking pl...

I have been hinting at some big news for the last few weeks now, and I am proud and utterly terrified to finally be able to say that with the help of some amazing humans, I will be moving forward on setting up a foundation to help educate, inform and motivate people to look into more natural and holistic forms of treatments. When fighting critical illness, we deserve the right to have all the information there is, not just what western medicine tells us. I have been so grateful for all the guidance and support I have received from so many people outside of my western medical team and most people are not afforded that luxury. What I want to do now is help other people. This is what makes me happy and my network of friends has shown me how important it is to help someone in a time of need. I am so thankful for everyones help, but now it is time to help others.  I have more than enough money to cover my expenses and I am now devoting my time, energy and effort all to this foundation...

To be honest I have no idea how this is going to play out 6 months, a year, 20 years, 40 years from now...  What I do know is that brain cancer as of today has been the best thing that has happened to me.  Yes it is hard as fuck and there are times where my body feels like it is rejecting itself from the inside out, but it is a small price to pay for inspiration.  I just turned 28 and it took me that long for my life to begin.  Up until now, I have been floating from stop-gap to stop-gap.  I never had any direction and everyday I woke more and more frustrated with myself.  I have surrounded myself with great people of all walks of life from CEO's of multi-million dollar companies, professional athletes, inspiring philanthropists and humanitarians, amazing artists of all walks, and countless driven individuals with direction.  I on the other hand have been passing time trying to figure out what the hell I am doing with my life.  Going from job...

After another 2 week hiatus and I apologize.  I have been exceptionally busy on the weekends and I have no internet access while I stay in LA aside from my phone.  Today I finally get to give a full report on the event we had at Detroit Bar and my birthday weekend which was both hard and amazing.  The third part of this post will be an explanation of my 'new life.'  There are things that have been set in motion that are now trains and will become very hard to stop.  To say this experience has changed my life is both cliche and an extreme understatement at the same time.  So lets start with the event that was on 2/9. HOLY SHIT.  Thats all I can say about that.  I am STILL utterly shocked, amazed, awed, inspired, motivated, grateful, moved and touched by ALL the support that was shown.  There were close to 430 people who eventually passed through the doors of the place at one time or another.  I was scared, absolutely petrified...

Some things get me thinking... I have now been in treatment for brain cancer going on three weeks.  I have had my ups and downs just like any other person going through the wonderful world of chemo and radiation therapy.  Tuesday night I got the results from my latest lab work back and my white blood cell count dropped pretty low.  I was instructed to hold off on the chemo until my numbers stabilized and I was not at such a high risk to get overly sick.  I went on a 2 day "chemocation 2013" and it was glorious.  I had my energy back, I slept better and felt healthy again...  And then I tested again Friday and was told to start my chemo again...  Dang...  It was fun while it lasted.  I am not trying to say my chemo is terrible and I know for a fact that compared to most people going through what I am, I am literally on an island vacation.  My side effects have been minimal and I have yet to vomit once (knoc...